Supporting families affected by epilepsy: what you can do

When someone lives with epilepsy, it is not only that person who is affected - the family also faces challenges every day. From unpredictable seizures to emotional stress and practical concerns, it requires a lot of strength, patience and understanding. But no one has to walk this road alone. With the right support, a family can feel stronger and safer.

💜 Understanding begins with knowledge

Many people know little about epilepsy. This causes misunderstandings, fear or wrong reactions during a seizure. By educating yourself about the different types of seizures, symptoms and first-aid measures, you can help families immensely.
Knowledge gives confidence - both to you and to them.

🧡 Listening without judgement

Sometimes the greatest gift is simply listen. Families of people with epilepsy often feel alone or misunderstood. By taking time to listen, you show that their feelings are allowed to be there: fear, frustration, fatigue, but also hope.
Just one conversation can be a huge relief.

🟣 Offering practical help

Epilepsy affects daily life. You can support families through small, practical things:

• Babysitting or monitoring during stressful periods

• Grocery shopping or bringing a meal

• Going along to an appointment

• Helping with administration or planning

Small gestures that seem simple to you often make a big difference to a family.

🌍 Breaking social isolation together

Many families withdraw because they fear reactions from others. Help them stay connected anyway:

• Invite them to activities

• Discuss epilepsy in your environment

• Show that they are welcome - always, even on bad days

A sense of community lowers stress and gives strength.

💪 What you can do during an attack

The right response can save lives and reduce panic. The key steps are:

• Stay calm and stay with the person

• Put something soft under the head

• Make the environment safe

• Never stuff sth. in the mouth

• Time the attack and call 112 if it lasts too long

Knowing this makes families feel safer in your presence.

💫 Building support and understanding together

Epilepsy brings challenges, but also moments of strength, love and solidarity. By supporting families, you not only help them practically - you also give them confidence, courage and the feeling that they are not alone.

Together, we can create a society where epilepsy is understood, and where every family gets the support it deserves.