IKAROS asbl informs about SUDEP and aids for nocturnal seizures

IKAROS asbl informs about SUDEP and aids for nocturnal seizures

IKAROS asbl wants to raise awareness about the risk of SUDEP (Sudden Unexpected Death in Epilepsy), especially in nocturnal tonic-clonic seizures. This risk is still insufficiently known, while correct information is of great importance for people with epilepsy and their environment.

In addition to raising awareness, vzw IKAROS also wants to inform about existing tools that can contribute to extra vigilance during the night. One such tool is NightWatch, a seizure alarm system developed to detect certain nocturnal tonic-clonic seizures and raise an alarm to a carer or loved one.

NightWatch is not a medical device that prevents or cures seizures, but can help in specific situations to react faster in case of a seizure during sleep. The suitability of this device varies from person to person and should always be carefully considered.

For people in whom this detection system can add value, non-profit association IKAROS wants to improve accessibility and make purchase a little more feasible, without commercial objectives.

Those seeking more information on SUDEP, nocturnal seizures or these types of devices can go through the available information channels.

For additional questions or general information, please contact asbl IKAROS.